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Moving Forward

Moving Forward - Archive

11/17/2010

Beautiful Day, Fantastic People

Post written by Dr. Karen Blindauer


Slideshow
To see pictures from the run/walk/fun run, please visit the photo slideshow of this event.

10/10/10 was a beautiful day. It was warm, sunny, and fresh. The trees in the Dousman area were in full color. 500 riders, walkers and runners came out to support the Parkinson’s and Movement Disorders Program at Froedtert & The Medical College of Wisconsin. Among those were me, my husband, son and neighbors, Drs. Hiner and Hung (Dr. Spangler was on call in the hospital), gold medal cyclist Connie Carpenter-Phinney, three of the Klement’s Racing Sausages and more than 50 hard-working volunteers who served as route sentries, rest stop workers, cooks and servers, massage therapists, face painters and more.

But the stars of the show were the people with Parkinson’s and their families. Like Jeff Kramer, who rides a three-wheeler. Balance problems from his Parkinson’s prevent him from riding a two-wheeler anymore. Jeff has never ridden his three-wheeler farther than four miles. But at 10:30 a.m., he set out with a group of about 50 folks — some on tandems, some on three-wheelers, some on one-speed bikes. This was the Parkinson’s community and their chidren and grandchildren. As Jeff started to struggle at about the five-mile point, he took a rest and a drink at the rest stop ... and then he peddled on. Despite the description that the 10-mile course was not hilly, he was struggling up a good-sized hill.

Meanwhile, world-class cyclist Connie Carpenter-Phinney, was closing in on the finish of her 100K ride. Connie is married to Davis Phinney, who was the first American to win a stage in the Tour de France and who established the Davis Phinney Foundation tp inspire and inform people living with Parkinson's. Connie had set out with a group of 50 at 8:30 a.m. One of those folks was George McCullough who had completed the 100K last year on a 40-year-old Schwinn in about six and a half hours. This year he had a new bike and it looked like he was going to shave about two hours off his time.
 
As Connie glided up a hill, knowing she only had a couple of miles to go, she saw a small man pumping hard on a three-wheeler, and she slowed her pace to accompany him. One of the thrills of Jeff Kramer’s life was riding across the finish line beside Olympian Connie Carpenter. The thing is, it was one of the thrills in her life, too. She knew it took Jeff more courage to ride his 10 miles than it ever took her to ride 60.

At 11:00 a.m., the walk began. 300 people lined up behind the Klement’s Hot Dog and set out to walk either one or two miles on the Glacial Drumlin Trail. It was a sea of color. Bill’s Buddies had a team of 60 family and friends, and they wore yellow. Team McCullough had 50 and they wore green. The rest of us wore blue and the Hot Dog, of course, wore “hot dog!” That may become next year’s new crayola color.

After the walking, riding and running, we entered the big tent and listened to live music by “Off the Grid,” the band fronted by Tom Klein, owner of The Bicycle Doctor, which hosted the event. We ate a hot meal of brats and Saz’s pulled pork. We walked around little downtown Dousman and felt like a community. I’m so proud to be a part of the Parkinson’s community. I’m so grateful that we raised $50,000 for our Parkinson’s Program. That money will be used to provide books and DVDs and support group speakers and other educational materials for people with Parkinson’s and their families. We will be able to put on our annual Symposium next year at a low cost to patients and families. We will be able to supplement the cost of community exercise classes. We will be able to send members of our team for further specialized training in the field. And we will be able to offer support to various research initiatives for Parkinson’s within the Neurosciences department.

Thank you!
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Blog post by Dr. Karen Blindauer


We started our blog more than years ago and now are taking a break. We feel honored to have appeared so often on the front page of the Froedtert website. We’ve been able to share information on the illnesses that we treat, but, more importantly, we’ve shared stories about the people who have these illnesses. We’ve talked about patients who dance, sing, create poetry and prose. We’ve shared ways that people are “living well” despite chronic conditions. We have been inspired.

The Parkinson’s and Movement Disorders Program at Froedtert & The Medical College of Wisconsin remains strong, comprehensive, interdisciplinary and continuously growing. We have three fellowship-trained movement disorder neurologists with over 40 years of experience among us. We have nationally renowned experts right here in Milwaukee. Our program offers the most up-to-date care in Parkinson’s disease (PD) including the state-of-the-art Deep Brain Stimulation surgery for PD and other movement disorders. Our nurses and therapists specialize in the treatment of PD and all have had the latest training.

Our Outreach Coordinator connects with all possible sources of information and referral for our patients regarding any psycho/social needs. She facilitates six local support groups and the Living Well with Chronic Conditions Program that we have spoken of so often.

The annual Wisconsin State Huntington Disease Conference meets on Saturday, April 21, at the Country Springs Conference Center in Pewaukee. Our annual Symposium for People with Parkinson’s and Their Families will take place on Saturday, September 15, also at the Country Springs Conference Center. Our annual Moving Forward: Ride/Walk for Parkinson’s event will again be held beside the Glacial Drumlin Trail in Dousman on Sunday, October 7.

We continue to teach medical students, residents and fellows, so the next generation of experts can carry on our legacy. We remain involved in research in Parkinson’s disease and other movement disorders, from the basic sciences to the latest clinical trials. We continue to participate in community lectures to educate our patients about their conditions and treatment options. We remain committed to providing the most comprehensive, state of the art, compassionate, and expert care for our movement disorders patients. We’re just going to take a break from blogging.

Vicki Conte, the Community Outreach Coordinator in the Neurosciences Center is going to begin a blog that will cover topics throughout the neurosciences from ALS, dementia, epilepsy, spine care and stroke. You’ll learn about the roles that our neurologists, neurosurgeons, neuro-psychologists, and physical medicine and rehab staff play. And importantly you’ll hear about the struggles and victories of patients who are cared for here. Tune in to "The Nerve Center" on a regular basis at www.froedtert.com/nervecenter.
 
 
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Description:

We are Medical College of Wisconsin neurologists who practice in the Parkinson's and Movement Disorders Program at Froedtert & The Medical College of Wisconsin. We are teaming up on this blog and hope to cover a range of topics regarding movement disorders. We also hope that we generate discussion and feedback from readers.

A little more information about each of us (click on the name to be taken to the official Medical College profile):

Bradley Hiner, MD, enjoys playing guitar and golf, better at the former than the latter. He has practiced Movement Disorder neurology in Wisconsin since 1987. He lives with his spouse on the East Side, along with a dachshund — Fritzie! — and a cat. They love living in Milwaukee … most of the year. They also have three great kids, all UW system grads.

Karen Blindauer, MD, is an avid runner, and her 6-year-old son is the light of her life.

Katie Spangler, MD, is a lifelong cheesehead who enjoys gardening, fishing, boating and spending time with family, friends and her beloved pug, Wally.
PROFILE
Drs. Hiner, Blindauer & Spangler image
Drs. Bradley Hiner, Karen Blindauer and Katie Spangler
Medical College of Wisconsin Neurologists
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Moving Forward Steps Back

Ride/Walk a Big Success

Getting Ready for the Ride!

Living Well With Chronic Conditions

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