We offer a variety of survivorship and support services to help patients cope with the emotional and practical aspects of their transplants and guide them on the path to recovery.
As vital members of their care team, patients need to know what to expect and how to be an active participant in their care. From the initial phase of the transplant process to their gradual return to a normal routine after transplant, being informed reduces anxiety and provides a sense of control and hope.
We provide patients and their families with a variety of educational options tailored to individual learning styles. Educational opportunities are delivered through one-on-one teaching by transplant coordinators, physicians, financial liaisons, social workers, pharmacists and nursing staff, as well as through videos and written educational information.
Through decades of treating patients undergoing blood and marrow transplants and treatment with cellular therapies and from answering questions from patients’ concerned families, we understand what patients and loved ones most want and need to know. Patients and their families have access to our series of expanded educational material that covers:
- How to Prepare for a Transplant
- Types of Transplants
- The Transplant Process
- What to Expect After a Transplant
Care After a Transplant
All transplants take place in the BMT Inpatient Unit and the Day Hospital, where patients have access to a complete team of physicians and support staff that focus exclusively on blood and marrow transplants.
A stem cell (or bone marrow) transplant is more like a transfusion, and no surgery is involved. Afterward, patients need strong support and careful monitoring. Because it takes time to develop a new immune system, patients are closely monitored for months or even years to prevent and treat complications.
The BMT and Cellular Therapy Program serves patients through a variety of dedicated areas.
- Outpatient Clinic — Patients visit the Outpatient Clinic for consultations, appointments and follow-up, including cancer rehabilitation and monitoring for graft vs. host disease.
- Day Hospital — In the Day Hospital, patients receive transplants and/or cellular therapies, along with a high level of care during the day, and then return home at night.
- BMT Inpatient Unit — The BMT Inpatient Unit is for patients who need more intensive, 24-hour care in a highly supportive environment .
Long-term survivors of BMT are cared for in the highly specialized Survivorship Clinic. The Survivorship clinic is staffed by physician with expertise in survivorship issues including monitoring for long-term complications, immune rehabilitation, physical and mental well-being and quality-of-life issues to name a few. Two years after undergoing a transplant, BMT survivors transfer their care to the Survivorship Clinic. This clinic is designed to monitor and promote routine health, screening, prevention and treatment of long-term side effects for transplant survivors.
Graft vs. Host Disease Clinic
After transplant, patients are carefully monitored for a variety of health complications. About 50 percent of patients who receive an allogeneic transplant develop a complication called graft vs. host disease (GVHD), in which the donor’s cells see the recipient’s body as foreign and attack it, causing damage.
Depending on the symptoms, GVHD can be acute, usually occurring within the first few months after transplant, or chronic, which can develop after an acute case and can last for months or years. Chronic GHVD is particularly challenging to manage because of its many different manifestations. Through our special GVHD Clinic, patients are closely monitored for symptoms and receive essential treatment if GVHD occurs.
In addition, we form one of nine primary study sites of the Chronic GVHD Consortium, an integrated group of academic medical centers, patient support organizations and clinical research resources around the country dedicated to conducting clinical research in GVHD and improving the care and medical outcomes of patients who experience it. Our association with the consortium gives patients access to the latest clinical trials in the fight against GVHD.
Celebration of Life Event
Each year, when it is possible to hold in-person events, we invite patients who have received a blood or marrow transplant to attend a special Celebration of Life event. Patients have an opportunity to hear from blood and marrow transplant specialists and talk with other people who have experiences similar to theirs. The event is a source of hope, optimism and encouragement for patients — and for medical staff find inspiration and continued motivation in each patient’s recovery.
Cancer Support Services
Our Cancer Network provides resources and services for all patients, including:
- Jeffrey C. Siegel Quality of Life Center
- Small Stones Wellness Center helps you manage changes in your appearance and promotes overall health and well-being.
- Art therapy
- Child life specialists to help children cope with the stress of an adult’s illness
- Smoking cessation (ask your provider for information)
- On-site services to deal with the social, emotional and financial issues related to illness and hospitalization
- Local area services, including restaurants, churches and synagogues, car rental, shopping and lodging options that may be helpful for patients and their families
- Support groups and classes — When in-person meetings resume or we start virtual groups
- Be The Match® — The world’s largest registry of potential marrow donors, operated by the National Marrow Donor Program.
- Blood & Marrow Transplant Information Network — An educational resource for transplant patients and their families.
- National Bone Marrow Transplant information link — Helps patients, caregivers and families cope with the social and emotional challenges of bone marrow transplant by providing vital information and personalized support services.
- Leukemia and Lymphoma Society for additional support groups and information.
- Versiti — We have an established partnership with the Versiti, which provides tissue typing and DNA testing for potential donors, as well as all of the blood products used by the BMT and Cellular Therapy Program.
Virtual Visits Are Available
Safe and convenient virtual visits by video let you get the care you need via a mobile device, tablet or computer wherever you are. We’ll gather your medical records for you and get our experts’ input so we can offer treatment options without an in-person visit. To schedule a virtual visit, call 1-866-680-0505.