Children with sickle cell disease (SCD) have pain sometimes and often manage most of their pain in the hospital. This pain pattern changes for most adults. Pain often becomes more frequent. In one SCD study, one-third of adults with SCD reported pain every day.
Treatment for this type of daily pain may be different than the treatment you had as a child. Our clinic is here to give you the tools to help you manage your pain outside of the hospital as much as possible. We have two infusion nurses to help answer you questions about managing your pain. We will schedule you in the clinic to be seen by a provider if you are unable to control your pain at home.
All patients getting pain medicine prescriptions from our clinic will be asked to sign a plan of care agreement. Most clinics that prescribe pain medicine to their patients ask them to do this. The purpose of the agreement is to help patients understand their medications, explain responsibilities and stress the importance of taking medications as prescribed.
How to Refill Pain Prescriptions
Please call the clinic for prescription refills at 414-805-2220, and choose option # 1. Below are a few things to keep in mind.
- Monitor your supply of medications to avoid running out over a weekend or holiday.
- Please call 48-72 hours in advance to allow time for processing.
- Medication pick-up will be between 8 a.m. and noon on Monday, Wednesday and Friday.
- If you are calling regarding an over-ride, please have the pharmacy notify the clinic by 4 p.m.
- Non-narcotic medications can be e-prescribed to your pharmacy of choice.
- If you are refilling narcotics, you will need to come to the clinic to pick up paper prescriptions. Please leave your first and last name, date of birth, the medication needing to be refilled and a return phone number for us to reach you.
Scheduling a Pain Medication Infusion Appointment
If your pain is getting worse and you think you need an evaluation of your pain and possible treatment with a pain medication infusion, you need to call first thing in the morning (8 a.m.) Monday through Friday. There is limited space in the clinic.
Below are a few things to keep in mind:
- Plan for your appointment to last two or three hours.
- We recommend that you do not work or attend school on the same day as receiving treatment for pain.
- You cannot drive to these appointments. When receiving pain medications you will require a ride home.
- Please, no kids unless accompanied by an adult other than yourself.
- If this is your first pain medication infusion, driving consent must be signed.
- Please be on time.
To schedule an appointment, call 414-805-2220 and choose option 3. Please leave a message with your first and last name, date of birth and a return phone number for us to reach you. We check this line for messages often.
Hi, My name is ______________________________________________________________
I am having a lot of pain in my _______________________________ (fill in body part location).
The pain began _____________________________________________________ (fill in when).
I am also having ____________________ (fill in symptoms, for example vomiting if applicable).
I tried _______ (fill in what you did at home, for example took my pain medication, took a bath).
I would like to come in ________________________________________________ (Staff will let you know when to come in).