That’s the most frequently asked question I hear. For good reason - there’s no early detection alert system available. And since the pancreas is a well-hidden organ within the body, tumors growing in it stay well-hidden too.

When it's discovered, it’s usually too late to do much to stop the disease. I don’t like exploring the statistics because the numbers are terrifying for the prognosis of Stage 4 pancreatic cancer. Basically only about 20% live past 1 year. Less than 3% live 5 years. As I approached the anniversary of my 2nd year since diagnosis, I’m joining the 6% of people who are gifted this time. Terrifying!

I focus on the fact that while the incidence of pancreatic cancer is increasing, the survival rate is also increasing. The five-year rate today is based on people who were diagnosed 5 years ago. I’m part of the group of more recently diagnosed people who together are marching towards creating a higher survival rate.

My discovery story: As our lives are played out in a series of stories, my story is both similar and unique to most cancer patients.

I’m not the profile of a person who would develop the disease: smoking, overweight, diabetes, male and African American. None of these apply to me.

I did not have any of the usual symptoms: Pain (usually in the abdomen or back), weight loss, jaundice, nausea, pancreatitis or recent-onset diabetes. 

I did have vague symptoms that I thought were caused by an ongoing flu: loss of appetite, change in stool, tiredness. I also had a ball-bearing size lump in a gland near my collar bone that I mentioned to three different doctors in the year prior to diagnosis. All said to alert them if it changed. It did.

My discovery gift was that I developed a 24-hour fever just days before Thanksgiving in 2017. It went away and I was fine. Two weeks later it came back so I decided to seek medical care for this vague, never-ending flu-like crud. I mentioned to the Nurse Practitioner that I just hadn’t felt right for awhile and my ball-bearing lump had grown a twin.

I could tell something didn’t sit right with her. She seemed to suspect something was wrong. She kept asking and asking if my stomach hurt. I kept answering no…. is it supposed to hurt?? When she left the room to consult, I could feel the start of quiet tears; I knew something was wrong.

And so the testing began - fast!

An ultrasound discovered the blocked bile duct causing the fevers, lack of appetite and changes in stools. A blocked bile duct is not uncommon with pancreatic cancer. A ct scan suggested a tumor was hiding in my pancreas. An x-ray revealed a field of small tumors covering my lungs. It wasn’t good news and it had spread.

So, my journey had begun. I was terrified and overwhelmed as it began. Today, frequently I am still terrified and overwhelmed. But, I’m still here. And for that, I am grateful. I appreciate everyone who has stepped into this journey with me. And I am especially grateful to the nurse practitioner who really listened and believed me. Every day I make a plan for tomorrow and I expect to be here for it. And by the grace of God, so far, I have been.

Kathleen Braier, Pancreatic Cancer Patient and "Together, We Are Strong" Blogger
About the Author

Is it possible to live a full and meaningful life with cancer? Kathleen thinks so. After she was diagnosed with stage 4 cancer in 2017, she spent a year on a chemo regimen that provided about 10 days of feeling well enough to live a fairly normal life between treatments. She joked about writing an imaginary blog for about a year before realizing... against all predictions of her imminent demise, she was still somehow alive. She decided she would write a real version of her blog to honor those diagnosed with any late-stage cancers. They might live longer than expected and she wanted to provide a bit of a guide that tells them what that might be like. Posts on the Together, We Are Strong cancer blog can also be read on her personal blog at https://livingmylifein10days.com/. Though not the experience she would have chosen, she does not believe living with an end-stage cancer should stop anyone from living their life with meaning.

Add new comment

Bless
Bliss
on April 4, 2022 - 2:23 am

The writer of this has passed away. May she Rest In Peace. What a beautiful soul.

Margaret
silecchio
on January 10, 2022 - 7:10 pm

My husband is about 13 to 14 months from what was likely the start of diagnosis, stage 4 pancreatic. Also, I am a Nurse practitioner and am so glad that you had an NP that listened to you and initiated testing. As a caregiver , it's incredibly hard to not be able to fix it.

Karla
Maroney
on December 19, 2021 - 2:22 pm

Thank you for this.

Raven
Patterson-Moore
on December 5, 2021 - 9:08 am

Thank you for sharing your very private and personal journey. Such an inspiring story. God Bless! Wishing you wellness, peace and happiness.

Fondazione
Nadia Valsecchi
on November 26, 2021 - 12:55 am

Thanks Kathleen for sharing real version of blog! It's useful information!

Naomi
Pearl
on September 5, 2021 - 10:11 pm

This is incredibly inspiring thank you so much for sharing. I lost my dad to pancreatic cancer 5 years ago. Much like you he had none of the indicators, was very healthy and active and had seen several doctors for just feeling kind of crummy and one day it was like it hit out of nowhere. I now have pancreatic issues myself and thank you for inspiring me.

Raven
Patterson-Moore
on December 5, 2021 - 9:01 am

God Bless! I hope you are doing better and that you are well.

NoysisGeary
NoysisGeary
on May 13, 2021 - 1:27 pm

very nice blog

af62fod23441k83b

Phillip
Knoll
on January 14, 2021 - 4:09 pm

To infinity and beyond 🚀️